Palliative Care ECHO 4.0 Improving Care for Those with Serious Illness



Date & Location
Tuesday, September 2, 2025, 6:30 AM - Saturday, September 2, 2028, 6:29 AM

Credits
AMA PRA Category 1 Credits™ (2.25 hours), ACPE Contact Hours (2.25 hours), ANCC Nursing Contact Hours (2.25 hours), CME-Designated Participation Credit (2.25 hours)

Overview

Palliative care clinicians manage complex symptoms, work with patients and families to establish goal aligned care and strive to improve the quality of life for those with serious illness. Most clinicians can provide primary palliative care for those with serious illness and at the end of life. In Year 4 of the Interprofessional Palliative ECHO® program, we will expand on pertinent topics to look at the palliative care in situations and settings through didactic presentations. Clinicians will acquire skills and establish professional connections to improve the care of patients with serious illness and at the end-of-life. The 9 session Palliative Care ECHO 4.0 contains didactics on a variety of Palliative Care Topics. Each didactic is 15 minutes long and will count toward 0.25 CE credits.

The didactics in this series include:

Presentation                                                                                                Faculty

Trauma-Informed Care                                                                               Sarah Guarda, LICSW
Palliative Care in the Emergency Department                                        Phil Lawson, MD
LGBTQIA+ Care in Serious Illness                                                              Bradley Eckert, MD
Medical Aid in Dying and Voluntary Stopping Eating and Drinking     Diana Barnard, MD
Severe Mental Illness as a Life-Limiting Illness                                        H. Samuel Landsman, MD
Serious Illness Conversation Guidance in Dementia                               Amelia Cullinan, MD
Spirituality and Cultural Sensitivity in Serious illness                               Connolly Huddleston
Neurological diseases – evidence for navigating care partner stress    Dax Volle, MD
Pediatric Palliative Care                                                                  Hannah Reuman, MD, Jennifer Ebbitt, RN

Presenters

Sarah Guarda, LICSW - Dartmouth Hitchcock Medical Center – Trauma Informed Care

Sarah Guarda is a Social Worker on the Inpatient Palliative Care team at Dartmouth Hitchcock Medical Center. She received her Master of Science in Social Work at Columbia University in New York, specializing in both Clinical Practice and Non-Profit Administration. Sarah joined the DHMC team in January 2024, where she utilizes a trauma informed lens to supporting seriously ill patients and their care partners on our service.

Sarah received a Bachelor’s in Psychology from Rutgers University in New Brunswick, NJ. She has over a decade of experience in various areas of social work practice- including palliative medicine and hospice, mental health and wellness, and policy geared towards creating safe and affordable supportive housing. She is passionate about the intersection of advocacy and social justice in health care, and translating this approach into practice. Sarah is a Licensed Independent Clinical Social Worker in both Vermont and New Hampshire.

Phil Lawson, MD - Palliative Medicine Consultant and Emergency Department Physician at Littleton Regional Healthcare - Palliative Care in the Emergency Department

Phil Lawson, MD is a practicing Palliative Medicine Consultant and  Emergency Department Physician at Littleton Regional Healthcare. He was the lead clinician representing the New Hampshire Health Care Decisions Coalition that amended RSA 137:J in 2021, the NH law regarding Advance Directives, POLST, DNR and surrogate decision making; and he, among other things, continues to teach on a state wide basis regarding Advance Care Planning and POLST. Consistent with his 96 yo teacher/father, he likes to be a little controversial as a strategy to stimulate thinking.

Bradley Eckert, MD - Dartmouth Health – LGBTQIA+ Hospice and Palliative Care

Bradley Eckert is a physician in the Section of Palliative Medicine at Dartmouth Health, where he works in the outpatient clinic and at the Jack Byrne Center for Palliative and Hospice Care. He most recently completed his hospice and palliative medicine fellowship at DHMC. Before that, he trained in Ohio in Family Medicine. He also holds a graduate degree in health policy from The George Washington University in Washington, DC and continues to be engaged with both state and federal policy initiatives, including serving on the Public Policy Committee for the American Academy of Hospice and Palliative Medicine and the Legislative Committee for the New Hampshire Medical Society. Outside of medicine, he enjoys spending time with his husband, two very crazy Labrador retrievers, and exploring new hikes in Northern New England.

Diana Barnard, MD - Associate Professor of Family Medicine at the University of Vermont Medical Center- Medical Aid in Dying

Dr. Diana Barnard is an Associate Professor of Family Medicine at the University of Vermont Medical Center. She is also board certified in Hospice and Palliative Medicine. Dr. Barnard is a founding board member of Patient Choices Vermont which led the grassroots effort to pass Vermont’s Medical Aid in Dying Law. Since passage of the law in 2013, Dr. Barnard has worked across the country on both educational and legislative efforts related to Medical Aid in Dying. She believes that everyone deserves the best possible genuinely patient centered end of life care.

H. Samuel Landsman, MD - Director of the Behavioral Intervention Team (BIT), the Inpatient Proactive Psychiatry Consultation Service at Dartmouth Health - Severe Mental Illness and Palliative Care

Dr. Landsman attended Tulane University School of Medicine in New Orleans, LA and completed residency training here at Dartmouth-Hitchcock Medical Center in general psychiatry, and fellowship training in Consultation-Liaison Psychiatry at Brown/Butler/Rhode Island Hospital in Providence, RI. Sam is now working as the director of the behavioral intervention team (BIT), the inpatient proactive psychiatry consultation service at Dartmouth-Health in Lebanon, NH. He is an assistant professor of psychiatry at Geisel School of Medicine at Dartmouth.  Sam is passionate about his work in the general medical hospital with people who struggle with mental health issues.

Amelia Cullinan, MD - Interim Section Chief Section of Palliative Medicine, Dartmouth Hitchcock Medical Center - Serious Illness Conversation Guidance in Dementia

Dr. Amelia Cullinan is the Interim Section Chief of Palliative Medicine at Dartmouth Hitchcock Medical Center, and an Associate Professor at the Geisel School of Medicine. She’s been at DHMC since 2012. She received her medical degree from Jefferson Medical College in Philadelphia, and did an Internal Medicine-Primary Care residency at St. Vincent’s Hospital in New York City, where she also completed a year as Chief Resident. She completed her training in Hospice and Palliative Medicine at the Harvard Palliative Care fellowship program in 2008. Dr. Cullinan’s non-clinical passions are education and quality improvement work. She is one of the core faculty for the Internal Medicine Residency, leading the 2nd year FIRE (Formal Instruction of Residents as Educators) rotation. She also co-directs the Serious Illness Care Program at Dartmouth-Hitchcock, which has educated over 500 interdisciplinary learners in the Serious Illness Conversation (SIC) Guide, and she was responsible for embedding the Guide into D-H’s electronic medical record.

Connolly Huddleston – Board Certified Chaplain, University of Vermont Medical Center-Spirituality and Cultural Sensitivity in Serious illness

Connolly Huddleston is a board-certified chaplain who currently serves as a Palliative Care Interfaith Chaplain at the University of Vermont Medical Center. She received her master’s in Pastoral Studies from Seattle University in Seattle, WA and completed her Clinical Pastoral Education residency at Legacy Emanuel Medical Center and Randall Children’s Hospital in Portland, OR in 2018. Connolly enjoys being in the great outdoors, hiking and traveling.

Dax Volle, MD - Board-Certified Geriatric Psychiatrist at Dartmouth Hitchcock Medical Center and Assistant Professor of Psychiatry and Medical Education at the Geisel School of Medicine at Dartmouth

Dax is a board-certified geriatric psychiatrist at Dartmouth Hitchcock Medical Center and an assistant professor of psychiatry and medical education at the Geisel School of Medicine at Dartmouth. At Dartmouth, he maintains an active clinical practice, supervises residents and fellows, serves as the section chief of geriatric psychiatry, as the program director for the geriatric psychiatry fellowship program, and as the director of the second-year course in psychiatry at the Geisel School of Medicine with an overall goal of coordinating cognitive and behavioral care services for older adults across multiple specialties and clinical sites. His main clinical and academic interests are cognitive health in aging, dementia care, movement disorders, late life depression, palliative care, medical education, neuromodulation, and philosophy of psychiatry.

Hannah Reuman, MD - Adult and Pediatric Palliative Care Provider, Dartmouth Hitchcock Medical Center – Introduction to Pediatric Palliative Care

Hannah Reuman is an adult and pediatric palliative care provider at Dartmouth Hitchcock Medical Center. She completed her pediatrics residency and hospice and palliative medicine fellowship at the University of Pittsburgh Medical Center. She then completed a master’s in medical education before moving to New Hampshire with the hope of creating a pediatric palliative care program at Dartmouth Hitchcock. Currently, there are no formalized pediatric palliative care programs in the state of New Hampshire. She is grateful to champions within the section of palliative medicine and within Dartmouth Medical Center for their support in making this vision become a reality!

Jennifer Ebbitt, RN - Nurse Navigator Jack Byrne Center Dartmouth Hitchcock – Introduction to Pediatric Palliative Care

Jennifer Ebbitt is a certified hospice and palliative care RN in both adult and pediatrics. After more than ten years working for a non-profit hospice organization in Rhode Island, she joined the palliative care team at Dartmouth Health as the Nurse Navigator for their Jack Byrne Center. Jennifer has experience working collaboratively to develop pediatric hospice programs, grow and support a hospital-based inpatient Hospice program, and also worked as a direct caregiver for patients receiving hospice care. She is passionate about contributing her expertise to education and advocacy for interprofessional colleagues, aiming to aid them in providing high-quality, meaningful care for patients of all ages facing serious illnesses and end-of-life care.


Learning Objectives
At the conclusion of this learning activity, participants will be able to:

  1. Discuss at least two ways to enhance care of patients with serious illness including improved management of symptoms and ability to better address goals of care with patients.

Accreditation

In support of improving patient care, Dartmouth Health is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. 

American Medical Association (AMA)
Dartmouth Health designates this Enduring Material for a maximum of 2.25 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. 

American Nurses Credentialing Center (ANCC)
Dartmouth Health designates this Enduring Material for a maximum of 2.25 ANCC contact hours.

Accreditation Council of Pharmacy Education (ACPE)
Dartmouth Health designates this knowledge-based activity for a maximum of 2.25 APCE Contact hours. Credit will be provided to NABP CPE Monitor within 60 days after the activity completion.

UAN JA0000201-0000-25-022-H99-P | UAN JA0000201-0000-25-022-H99-T

All other learners may claim CME-Participation credit. Consult your professional licensing board regarding the applicability and acceptance of CME-Participation credit for programs certified for credit by organizations accredited by Joint Accreditation for Interprofessional Education.

Receiving Credit

Pharmacists/Pharmacy Technicians
If you wish to apply for ACPE credit, you will need to enter your NABP ePID# and Date of Birth in your CE Profile by following these steps:

  • Log in to Dartmouth Health's CE portal.

  • From the My Account Menu select Profile.

  • Enter your Date of Birth (Month and Day)

  • In the Credentials section, select NABP ePID# from the drop down and enter your ID number.

  • Scroll down to the bottom of the screen and click Submit


Registration/Requirements for Successful Completion
You may claim credit for successful completion of this online course. In order to claim credit, you must follow these steps:

  1. Click the Register tab above. If you are not logged into your account, you will need to log in. Use the Forgot Your Password? button if you need to reset your password.

  2. Register for the activity.

  3. Click the Content/Tests tab and then View Content to view the recordings. View ALL of the recordings.

  4. Complete the Post-Test (attestation - return to the Content/Tests tab to find it).

  5. Click the Complete Evaluation button, or click My Account in the menu bar; then click Evaluations.

  6. Complete and Submit the Evaluation.


Bibliographic Material

Trauma Informed Care Resources

  • Ferentz, L. (2017). Trauma Informed Assessments. The Ferentz Institute. Ebook Trauma Informed Assessments_2017_Final_vs.2 (website-files.com)

  • Ganzel, B. L. (2018). Trauma-informed hospice and palliative care. The Gerontologist 58(3), 409-419. https://doi.org/10.1093/geront/gnw14

  • Great Valley Publishing Company, Inc. (n.d.). Self-Care as a Trauma-Informed practice. https://www.socialworktoday.com/archive/exc_1117.shtml

  • Maataoui, SL. Trauma informed care at end of life: The role of the team and culture. VA Maine Healthcare System, Maine Hospice Council. Trauma Informed Care at End of Life: The Role of the Team and Culture (mainehospicecouncil.org)

  • McFarlane, AC. (2010). The long-term costs of traumatic stress: intertwined physical and psychological consequences. World Psychiatry. 9(1):3-10. https://doi.org/10.1002/j.2051-5545.2010.tb00254.x.

  • National Association of Social Workers. (2004). Standards for Palliative and End of Life Care. Washington, DC. Standards for Palliative and End of Life Care (socialworkers.org)

  • National Hospice and Palliative Care Organization (NHPCO, 2022). Questions and answers about trauma-informed end of life care. NHPCO Trauma Informed EOL Care Work Group. Q_A_Trauma_Informed_EOL.pdf (nhpco.org)

  • Substance Abuse and Mental Health Services Administration. SAMHSA’s Concept of Trauma and Guidance for a Trauma-Informed Approach. HHS Publication No. (SMA) 14-4884. Rockville, MD: Substance Abuse and Mental Health Services Administration, 2014.

  • Substance Abuse and Mental Health Services Administration. (2014). Trauma-Informed care in behavioral health services. In Treatment Improvement Protocol (TIP) Series 57.

  • Statement of Principles of Palliative Care. (2019, September 1). ACS. https://www.facs.org/about-acs/statements/principles-of-palliative-care/

  • Van Der Kolk, B. (2014). The body keeps the score: Brain, mind, and body in the healing of trauma. New York: Viking.

  • Morrison, S.R., Meier, D.E., Arnold, R.M. (2021). What’s wrong with advance care planning? Journal of the American Medical Association (326)16: 1575-1576. https://doi.org/10.1001/jama.2021.16430

  • Jimenez G et al. Overview of systematic reviews of Advance Care Planning: Summary of Evidence and Global Lessons. J Pain Sym Mgt. 56(3): 436-459 , 2018

Palliative Care in the Emergency Department Resources

  • Wang D et al. Top Ten Tips Palliative Care Clinicians should know about caring for Patients in the Emergency Department. 2019 Dec;22(12):1597-1602. https://doi.org/10.1089/jpm.2019.0251. 

  • Wang D and Heidt R. Emergency Department Embedded Palliative Care Service Creates Value for Health Systems. J Palliat Med 2023; May 26(5): 646-652. https://doi.org/10.1089/jpm.2022.0245. Epub 2022 Nov 11.

  • Loffredo A et al. United States Best Practice Guidelines for Primary Palliative Care in the Emergency Department. Annals of Emergency Medicine Vol 78(5), Nov 2021, 658-669

  • Echsler AH et al. Prior Advanced Care Planning and Outcomes of CPR in the ED of a Comprehensive

    Cancer Center. Cancers 2024, 16(16), 2835; https://doi.org/10.3390/cancers161628354

  • Baugh C et al. A hospice transitions program for Patients in the Emergency Department. JAMA. JAMA Netw Open. 2024;7(7):e2420695. https://doi.org/10.1001/jamanetworkopen.2024.20695

  • Bigelow S et al. Difficult conversation: Outcomes of Emergency Department Nurse-Directed Goals of Care Discussions. Journal of Palliative Care. Volume 39, Issue 1; https://doi.org/10.1177/08258597221149402

    2024

LGBTQIA+ Hospice and Palliative Care Resources

  • Daniel, H., Butkus, R., & Health and Public Policy Committee of American College of Physicians (2015). Lesbian, Gay, Bisexual, and Transgender Health Disparities: Executive Summary of a Policy Position Paper from the American College of Physicians. Annals of internal medicine, 163(2), 135–137.

  • Griggs, J., Maingi, S., Blinder, V., Denduluri, N., Khorana, A. A., Norton, L., Francisco, M., Wollins, D. S., & Rowland, J. H. (2017). American Society of Clinical Oncology Position Statement: Strategies for Reducing Cancer Health Disparities Among Sexual and Gender Minority Populations. Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 35(19), 2203–2208.

  • Lick, D. J., Durso, L. E., & Johnson, K. L. (2013). Minority Stress and Physical Health Among Sexual Minorities. Perspectives on psychological science : a journal of the Association for Psychological Science, 8(5), 521–548.

  • Maingi, S., Bagabag, A. E., & O'Mahony, S. (2018). Current Best Practices for Sexual and Gender Minorities in Hospice and Palliative Care Settings. Journal of pain and symptom management, 55(5), 1420–1427.

  • Marie Curie (2016) “Hiding who I am” - The reality of end-of-life care for LGBT people. Marie Curie. https://www. mariecurie.org.uk/globalassets/media/documents/policy/ policy-publications/june-2016/reality-end of life-care- lgbt-people.pdf

  • Rosa, W. E., Roberts, K. E., Braybrook, D., Harding, R., Godwin, K., Mahoney, C., Mathew, S., Atkinson, T. M., Banerjee, S. C., Haviland, K., Hughes, T. L., Walters, C. B., & Parker, P. A. (2023). Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review. Palliative medicine, 37(4), 460–474.

  • Stein, G. L., Beckerman, N. L., & Sherman, P. A. (2010). Lesbian and gay elders and long-term care: identifying the unique psychosocial perspectives and challenges. Journal of gerontological social work, 53(5), 421–435.

  • Stein, G. L., Berkman, C., O'Mahony, S., Godfrey, D., Javier, N. M., & Maingi, S. (2020). Experiences of Lesbian, Gay, Bisexual, and Transgender Patients and Families in Hospice and Palliative Care: Perspectives of the Palliative Care Team. Journal of palliative medicine, 23(6), 817–824.

Medical Aid in Dying Resources

Severe Mental Illness and Palliative Care Resources

  • Appelbaum PS: Assessment of patients’ competence to consent to treatment. N Engl J Med 2007;357:1834–1840.

    Baruth JM, Ho JB, Mohammad SI, Lapid MI. End-of-life care in schizophrenia: a systematic review. Int Psychogeriatr. 2021 Feb;33(2):129-147. https://doi.org/10.1017/S1041610220000915. Epub 2020 Jun 19. PMID: 32618553

  • Boettger S, Bergman M, Jenewein J, et al.: Assessment of decisional capacity: Prevalence of medical illness and psychiatric comorbidities. Palliat Support Care 2015;13:1275–1281.

  • Daumit GL, Pronovost PJ, Anthony CB, et al.: Adverse events during medical and surgical hospitalizations for persons with schizophrenia. Arch Gen Psychiatry 2006;63:267–272.

  • Donald EE, Stajduhar KI. A scoping review of palliative care for persons with severe persistent mental illness. Palliat Support Care. 2019 Aug;17(4):479-487. https://doi.org/10.1017/S1478951519000087. PMID: 30887934

  • Elie D, Marino A, Torres-Platas SG, et al.: End-of-Life Care Preferences in Patients with Severe and Persistent Mental Illness and Chronic Medical Conditions: A Comparative Cross-Sectional Study. Am J Geriatr Psychiatry. 2018;26:89–97.

  • Fernandez C, Kennedy HG, Kennedy M: The recovery of factors associated with decision-making capacity in individuals with psychosis. Br J Psychiatry Open 2017;3:113–119.

  • Gerhart J, Oswald LB, McLouth L, Gibb L, Perry L, England AE, Sannes T, Schoenbine D, Ramos K, Greenberg J, O'Mahony S, Levine S, Baron A, Hoerger M. Understanding and Addressing Mental Health Disparities and Stigma in Serious Illness and Palliative Care. Illn Crises Loss. 2025 Jan;33(1):109-129. https://doi.org/10.1177/10541373231201952. Epub 2023 Sep 24. PMID: 39668846; PMCID: PMC11633853.

  • Larkin A, Hutton P: Systematic review and meta-analysis of factors that help or hinder treatment decision-making capacity in psychosis. Br J Psychiatry 2017;211:205–215.

  • Lawrence D, Hancock KJ, Kisely S: The gap in life expectancy from preventable physical illness in psychiatric patients in Western Australia: Retrospective analysis of population-based registers. BMJ 2013;346:f2539.

  • Macleod AD: The reactivation of post-traumatic stress disorder in later life. Aust N Z J Psychiatry 1994;28:625–634.

  • Mota N, Tsai J, Kirwin PD, et al.: Late-life exacerbation of PTSD symptoms in US veterans: Results from the National Health and Resilience in Veterans Study. J. Clin. Psychiatry 2016;77:348–354.

  • Olfson M, Gerhard T, Huang C, et al.: Premature mortality among adults with schizophrenia in the United States. JAMA Psychiatry 2015;72:1172–1181.

  • Riley K, Hupcey JE, Kowalchik K. J Hosp Palliat Nurs. 2022 Jun 1;24(3):E88-E93. https://doi.org/10.1097/NJH.0000000000000855. Epub 2022 Mar 14. PMID: 35285463

  • Sessums LL, Zembrzuska H, Jackson JL: Does this patient have medical decision-making capacity? JAMA 2011;306:420–427. MENTAL HEALTH AND SERIOUS ILLNESS 1175

  • Shalev D, Brewster K, Arbuckle MR, et al.: A staggered edge: End-of-life care in patients with severe mental illness. Gen Hosp Psychiatry 2017;44:1–3.

  • Stern TA, Fricchione GL, Rosenbaum JF: Massachusetts General Hospital Handbook of General Hospital Psychiatry. Philadelphia, PA: Elsevier Health Sciences, 2010.

  • Trachsel M, Irwin SA, Biller-Andorno N, et al.: Palliative psychiatry for severe persistent mental illness as a new approach to psychiatry? Definition, scope, benefits, and risks. BMC Psychiatry 2016;16:260.

  • Trachsel M, Scott A Irwin, Nikola Biller-Andorno, Paul Hoff, Florian Riese. Palliative psychiatry for severe and persistent mental illness, The Lancet Psychiatry, Volume 3, Issue 3, 2016, Page 200

  • Walker ER, McGee RE, Druss BG: Mortality in mental disorders and global disease burden implications: A systematic review and meta-analysis. JAMA Psychiatry 2015;72:334–341.

  • Wilson R, Hepgul N, Higginson IJ, Gao W. End-of-life care and place of death in adults with serious mental illness: A systematic review and narrative synthesis. Palliat Med. 2020 Jan;34(1):49-68. https://doi.org/10.1177/0269216319867847. Epub 2019 Oct 14. PMID: 31608768

  • Woods A, Willison K, Kington C, Gavin A. Palliative care for people with severe persistent mental illness: a review of the literature. Can J Psychiatry. 2008 Nov;53(11):725-36. https://doi.org/10.1177/070674370805301104. PMID: 19087466

Advance Care Planning for Patients with Dementia Resources

  • Brannan S, Campbell R, Davies M, English V, Mussell R, Sheather JC. BMA end-of-life care and physician-assisted dying project. J Med Ethics. 2016 Jun;42(6):409-10. https://doi.org/10.1136/medethics-2016-103608. PMID: 27222523

  • Dixon J, Karagiannidou M, Knapp M. The Effectiveness of Advance Care Planning in Improving End-of-Life Outcomes for People with Dementia and Their Carers: A Systematic Review and Critical Discussion. J Pain Symptom Manage. 2018 Jan;55(1):132-150.e1. https://doi.org/10.1016/j.jpainsymman.2017.04.009. Epub 2017 Aug 5. PMID: 28827062.

  • Sellars M, Chung O, Nolte L, Tong A, Pond D, Fetherstonhaugh D, McInerney F, Sinclair C, Detering KM. Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies. Palliat Med. 2019 Mar;33(3):274-290. https://doi.org/10.1177/0269216318809571. Epub 2018 Nov 8. PMID: 30404576; PMCID: PMC6376607.

  • Mezey MD, Mitty EL, Bottrell MM, Ramsey GC, Fisher T. Advance directives: older adults with dementia. Clin Geriatr Med. 2000 May;16(2):255-68. https://doi.org/10.1016/s0749-0690(05)70056-2. PMID: 10783428.

  • Pennington C, Davey K, Ter Meulen R, Coulthard E, Kehoe PG. Tools for testing decision-making capacity in dementia. Age Ageing. 2018 Nov 1;47(6):778-784. https://doi.org/10.1093/ageing/afy096. PMID: 30010696.

  • Piers R, Albers G, Gilissen J, De Lepeleire J, Steyaert J, Van Mechelen W, Steeman E, Dillen L, Vanden Berghe P, Van den Block L. Advance care planning in dementia: recommendations for healthcare professionals. BMC Palliat Care. 2018 Jun 21;17(1):88. https://doi.org/10.1186/s12904-018-0332-2. PMID: 29933758; PMCID: PMC6014017.

  • Berry CE, Montgomery SH, Santulli R, Cullinan A. Adapting the Serious Illness Conversation Guide for Dementia Care. Am J Hosp Palliat Care. 2024 Aug;41(8):942-951. https://doi.org/10.1177/10499091231200214. Epub 2023 Sep 1. PMID: 37655362.

    Spirituality and Cultural Sensitivity in Serious Illness Resources

  • llard V, Moss J, Padgett N, Tan X, Kennedy AB (2021) Attitudes, beliefs and behaviors of religiosity, spirituality, and cultural competence in the medical profession: A cross-sectional survey study. PLoS ONE 16(6): e0252750. https://doi.org/10.1371/journal.pone.0252750

  • Rego et al., The influence of spirituality on decision making in palliative care outpatients: a cross-sectional study. BMC Palliative Care (2020) 19:22, https://doi.org/10.1186/s12904-020-0525-3

  • Klitzman, R. Doctor with you pray with me? Responding to Patients’ Religious and Spiritual Concerns. Acad Med. 2021 March 01; 96(3): 349–354. https://doi:10.1097/ACM.0000000000003765

  • Robert W. Kirchoff, et al., Spiritual Care of Inpatients Focusing on Outcomes and the Role of Chaplaincy Services: A Systematic Review. Accepted: 19 January 2021 / Published online: 11 February 2021. Journal of Religion and Health (2021) 60:1406–1422 https://doi.org/10.1007/s10943-021-01191-z

  • Anke I. Liefbroer, et al., The spiritual care intervention “In dialogue with your life story”: Results of a longitudinal study on palliative clients’ spiritual wellbeing. Palliative Medicine 2025, Vol. 39(3) 413–424. sagepub.com/journals-permissions https://doi.org/10.1177/02692163251319143.

Impact of Neurologic Diseases on the Care Partner Resources

  • Harrad R, Sulla F. Factors associated with and impact of burnout in nursing and residential home care workers for the elderly. Acta Biomed. 2018 Dec 7;89(7-S):60-69. https://doi.org/10.23750/abm.v89i7-S.7830. PMID: 30539935; PMCID: PMC6502144.

  • Kluger BM, Hudson P, Hanson LC, Bužgovà R, Creutzfeldt CJ, Gursahani R, Sumrall M, White C, Oliver DJ, Pantilat SZ, Miyasaki J. Palliative care to support the needs of adults with neurological disease. Lancet Neurol. 2023 Jul;22(7):619-631. https://doi.org/10.1016/S1474-4422(23)00129-1. Erratum in: Lancet Neurol. 2023 Oct;22(10):e11. https://doi.org/10.1016/S1474-4422(23)00310-1. PMID: 37353280.

  • Toze M, Ray M, George T, Sisson K, Nelson D. End of life care for long-term neurological conditions: A meta-ethnographic review of the experiences of informal carers. Palliat Med. 2021 Feb;35(2):335-354. https://doi.org/10.1177/0269216320974262. Epub 2020 Nov 25. PMID: 33238811; PMCID: PMC7897797.

Introduction to Pediatric Palliative Care Resources

  • What is Pediatric Palliative Care?

  • NHPCO Pediatric Facts and Figures 2023 Edition (PDF)

  • Committee on Approaching Death: Addressing Key End of Life Issues; Institute of Medicine. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. Washington (DC): National Academies Press (US); 2015 Mar 19. Appendix F, Pediatric End-of-Life and Palliative Care: Epidemiology and Health Service Use. Available from: https://www.ncbi.nlm.nih.gov/books/NBK285690/#

  • Ernecoff NC, Anhang Price R. Concurrent Care as the Next Frontier in End-of-Life Care. JAMA Health Forum. 2023;4(8):e232603. https://doi.org/10.1001/jamahealthforum.2023.2603

  • Laird, Jessica, Melanie J. Cozad, Jessica Keim-Malpass, Jennifer W. Mack, and Lisa C. Lindley. "Variation In State Medicaid Implementation of the ACA: The Case of Concurrent Care for Children: Study examines state-level implementation of concurrent care for pediatric Medicaid beneficiaries." Health Affairs 39, no. 10 (2020): 1770-1775.

  • Boyden, Jackelyn Y., Puja J. Umaretiya, Louise D'Souza, and Emily E. Johnston. "Disparities in Pediatric Palliative Care: Where Are We and Where Do We Go from Here?." The Journal of Pediatrics 275 (2024).

Provider Contact Information
Provider contact information for questions regarding accreditation of the activity:

Center for Learning and Professional Development
ACE Office
Dartmouth Health
[email protected]